This site has been opened primarily to tell the story of our son, Michael, who died in 2000 after suffering from a brain tumour for a year. But Michael was so much more than that sentence could possibly explain, and so, after his death, I wrote a book about this extraordinary boy and it was read by many people in blog form on the internet.

That site has since closed, and I have moved it, in its complete book format, here, in the hope that it might encourage and support other parents, carers and patients. Although there is no happy ending, there is a lot of joy on the journey, and I hope that, at the end of it, you, the reader, might have come to know Michael a little better and found something helpful and hopeful to take away witrh you.

For those who would prefer not to read about his last few months – stop at the end of part two.  We want you to find as much, or as little, as is helpful to you.

There are also links to the The Brain Tumour Charity  . Michael campaigned ferociously  for better research and support and a possible cure whilst he was alive, and expected us, his family, to continue after his death. We do. We hope you will, too.

Please write and tell us what you think, once you have ‘met’ Michael.

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Please do let us know what you think….

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Auschwitz – and no redemption

Last weekend, I went to Krakow. I’d heard it was a wonderful city ( disregarding the high proportion of stag and hen parties ), high on culture and architecture and really worth exploring.

My husband decided we should visit Auschwitz. I’ve been to Hiroshima ( see previous blog posts ), Vietnam, Cambodia, the Burma Railway, Changi and the hideous site that is Oradour-sur-Glane in France, so these things are not new to us, and although we are normally stunned into silence, the message we come away with it that of determination never to allow it again in our name.

We spent four hours on Saturday at Auschwitz and Birkenau, and it was utterly traumatic. The guide we had MUST have had some personal experience or family connection because she was absolutely visceral in what she said. She was obviously still desperately upset and angry about having had some Holocaust Deniers on a trip last week, and she wasn’t going to let up for a minute in her description of the horrors. When I asked her how she could do this every day, to walk amongst such scenes of depravity and degradation – and then have to defend it to the kind of bigots who have no eyes to see nor ears to hear – she said to me that she is on a mission to make sure people understand. Four hours with her and you DO. I’m still going over and over it. The weather was appalling while we were there – lashing down with rain. It had been hot and dry all week, but even so it was a quagmire in no time. Maybe that is the best weather in which to see such a dreadful place.

There are plenty of sites which will list those depravities for you and I don’t intend to do that here. Auschwitz I is a museum, and it explains, hideously, what happened.

Auschwitz II – Birkenau – is, simply, THERE. It explains nothing, beyond a large sign at the entrance. You are escorted by guide who explains what your eyes are alighting upon. And the more you understand of where you are putting your feet, and in whose steps you tread, the more your soul sinks under the weight of the knowledge of it.

I can’t bring myself to wear my shoes again until I’ve washed them in the machine. I feel as though I’ve brought death home with me, ridiculous though that sounds. I don’t want a milligram of DNA from that place in my home.

Yet, why? Hiroshima was a place which filled me with revulsion: so was Kanchanaburi.

But Birkenau is different. There is no plea for forgiveness, no request for redemption, no attempt to say ‘Lest we Forget’ or ‘Please leave money for the Visitor Centre’ or – anything. It just IS. It sits on the skyline and it sears your eyeballs. You stand under Death Gate and your eyes follow the railway track to Hell.

How could this be.

Death Gate. BirkenauThe tracks


So, here we are.

This is the post excerpt.

Apparently, this is a Blog. I’m not sure why I need a blog, except the people who know me say, ‘You should write a book!’ I’m not sure why I should write a book, except that I think a lot about things, and then I want to say something about things, and my spouse’s eyes glaze over and he hopes I’ll go away and tell Facebook or the cat instead. Sometimes I do – but I might just bore you instead.

First blog postSlide151

Meet Michael Norton. I started writing after he died: thats a separate story and you can find it on AN EXTRAORDINARY BOY . He died in 2000, aged 14 of an aggressive brain tumour, and that isn’t something you get over or go around. I wrote about him, and about us, and about brain tumours – you’ll find everything you need at that link. I should know. I’ve been a Trustee of the Charity for 10 years and a lot of my life goes into trying to spread awareness, raise funds and bolster hope.

Cancer has been a big part of my life. Losing Michael was always going to be the worst part – but with a sister who had aggressive breast cancer, a mother with small cell lung cancer and endless grandparents and cousins with various types of the disease, you can imagine my delight to be diagnosed with myeloma, an incurable cancer of the bone marrow, 8 years after Michael died. It is a bit of a surprise to everyone that I’m still here. I guess that, at the time of writing, Michael is enjoying some Celestial peace and quiet and thinks if I arrive too soon, I’ll start nagging at him to do his maths homework and his cello practice. Probably right.

Anyway, life is weird and set to get weirder. Hello and welcome. Buckle up. There’s a strange journey ahead of us.